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Pregnancy Self-Care When Baby Has a Heart Defect

Prenatal

Pregnant parents can always help to protect and nurture their baby with self-care. Self-care is even more important when a developing baby has a congenital heart defect (CHD), or other health condition.If you are pregnant, you are likely focusing all your attention on your baby, especially after learning that your baby has a heart difference. It is important to remember that in caring for yourself, you are also caring for your baby.

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Keep your body healthy

When your body is healthy, you can better support your baby's body.

As much as possible, pregnant parents should:

  • Go to all their prenatal appointments

  • Take all their prescribed medications, and no medications that are not prescribed

  • Eat nourishing foods that taste and feel good

  • Rest as much as they need to and are able to

  • Drink enough water

  • Get some exercise if a doctor says it is OK, and if it feels OK

Keep your mind healthy

If you can stay as relaxed as possible during your pregnancy, you can support your growing baby. It is hard to relax when you are living with uncertainty and fear. These strategies can help you to manage your thoughts and feelings, and reduce your stress.

Pregnant parents often feel better when they:

  • Ask for a referral to a therapist

  • Exercise if it feels OK

  • Get outside

  • Paint, draw, color, sculpt, sew, embroider, design, build

  • Spend time with friends and animals

  • Meditate

  • Find other parents who have a child with a heart defect, and talk regularly

  • Practice grounding in the moment: focus on breathing, and on what you can see, hear, smell, feel, and taste right now

  • Ask for specific help with work, childcare, and chores

  • Talk to a doctor right away if they feel overwhelmed or hopeless

You and your baby deserve self-care

Right now, your body is your baby's home. When you keep yourself healthy, you give your baby a healthy home. However, self-care does not stop at delivery, and it will remain critical after your baby is born.

You owe it to yourself, and to your baby, to take care of your mind and your body. As a person, you deserve rest, care, and nourishment. When you are well, you can be the parent your baby deserves.

This content was reviewed by a cardiologist and a psychologist at Boston Children's Hospital.

Developmental care is best when it is local. Families local to Boston can receive developmental care from the Cardiac Neurodevelopmental Program (CNP), including a prenatal stress reduction program. They can receive medical care from the Maternal Fetal Medicine Center. Families from other regions can use the link below to find their local care team.

Dandy, S., Wittkowski, A., & Murray, C. D. (2024). Parents' experiences of receiving their child's diagnosis of congenital heart disease: A systematic review and meta‐synthesis of the qualitative literature. British Journal of Health Psychology, 29(2), 351-378.https://bpspsychub.onlinelibrary.wiley.com/doi/full/10.1111/bjhp.12703
Espinosa, K. M., Julian, M., Wu, Y., Lopez, C., Donofrio, M. T., Krishnan, A., ... & Le, H. N. (2022). “The Mental Health Piece is Huge”: perspectives on developing a prenatal maternal psychological intervention for congenital heart disease. Cardiology in the Young, 32(8), 1268-1275.https://www.cambridge.org/core/journals/cardiology-in-the-young/article/abs/mental-health-piece-is-huge-perspectives-on-developing-a-prenatal-maternal-psychological-intervention-for-congenital-heart-disease/5F8C4C830D38DB48318E3D7E31422A1E
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Roberts, S. D., Kazazian, V., Ford, M. K., Marini, D., Miller, S. P., Chau, V., ... & Sananes, R. (2021). The association between parent stress, coping and mental health, and neurodevelopmental outcomes of infants with congenital heart disease. The Clinical Neuropsychologist, 35(5), 948-972.https://www.tandfonline.com/doi/abs/10.1080/13854046.2021.1896037
Sood, E., Lisanti, A. J., Woolf-King, S. E., Wray, J., Kasparian, N., Jackson, E., ... & Brosig, C. L. (2021). Parent mental health and family functioning following diagnosis of CHD: A research agenda and recommendations from the Cardiac Neurodevelopmental Outcome Collaborative. Cardiology in the Young, 31(6), 900-914.https://www.cambridge.org/core/journals/cardiology-in-the-young/article/abs/parent-mental-health-and-family-functioning-following-diagnosis-of-chd-a-research-agenda-and-recommendations-from-the-cardiac-neurodevelopmental-outcome-collaborative/B216237CB31E7044E74BA47C8E4DC8A8
Tacy, T. A., Kasparian, N. A., Karnik, R., Geiger, M., & Sood, E. (2022, June). Opportunities to enhance parental well-being during prenatal counseling for congenital heart disease. In Seminars in Perinatology (Vol. 46, No. 4, p. 151587). WB Saunders.https://www.binasss.sa.cr/bibliotecas/bhm/jun/22.pdf

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