Alt text on BCH Logo
Deep Dive

Social Skills for Adults with Heart Defects

Ages 18 - 24 Years

Some young adults with heart defects (CHDs) have more trouble with social skills than their peers.  They may feel isolated, or have trouble navigating friendships and romantic relationships. Luckily, people can continue to develop social skills throughout their lifetime with learning and practice. Here are some ideas to help.

5 min read
Share:

Digging into feelings

When people understand emotions, they have an easier time managing social situations. They can better monitor and manage their own reactions, and respond more appropriately to other people.

Young adults can get better at understanding feelings by working with a counselor, talking about feelings with a friend or loved one, reading books, and watching webinars or videos.

Learning about feelings can include:

  • Learning the names of feelings, including complex feelings and mixed feelings

  • Asking people they are feeling, and why, and really listening openly to their answers

  • Labeling and explaining your own feelings

  • Watching videos and reading books with emotional content, and talking with others about:

    • what characters are feeling, and why

    • how you can tell what they feel

    • what could have caused those feelings

    • why characters might be making certain choices

Working on relationships

Young adults with heart defects often need a little more help than others to understand relationships.

Adults can learn more about relationships by reading books, watching webinars or videos, working with a counselor, and talking with family members or loved ones.

Learning about relationships can mean:

  • Learning about the different ways in which people can be connected, and what defines these different types of relationships

  • Reading books and watching videos about different types of relationships

    • Talking with a friend or family member about how the people are connected, how you can tell, and how they act as a result

  • Learning about what behaviors are expected within different types of relationships

  • Learning about consent, including how to ask for consent, how to give or deny consent, how to monitor consent over the course of an experience, and how to deny consent

  • Understanding red flags, or signs that another person may be acting in a way that is not kind or safe

Practicing conflict resolution

Young adults generally need to learn how to resolve disputes without relying on others to help.

Steps to good conflict resolution can include:

  1. First, take a deep breath and count to 5.  Label your own feelings and thoughts. Make sure you are calm enough to work on this problem.

  2. Ask the other person for their side, and listen quietly.  Really think about what they are saying.

  3. Think about the situation.  Think about how each person might understand it, and how they could be right from their perspective.

  4. Explain your perspective using “I” statements, and without blaming

  5. Discuss a possible compromise

  6. Keep talking until everyone can accept the decision

Learning about social expectations

Some young people need help learning what is expected in different social situations. Others can help them to learn the unwritten rules of their culture and community.

Before a social event, young adults can ask a trusted friend or family member what to expect. They can ask the trusted person to walk them through what will happen, and what behaviors are expected. Watching videos or looking at pictures of similar events can help. Then, they can feel more confident going into the event.

Some young people like to practice acting out a social event beforehand, or even making a schedule or script.

Experiencing and exploring

Young adults usually become more socially adept when they have the opportunity to practice and be successful in a wide range of social experiences. 

They can try:

  • joining a club or team of people with similar interests

  • joining a heart defect advocacy group, or attending events

  • challenging themselves to go to new types of events, activities, and places

  • volunteering in situations where they interact with people who are younger, older, of differing abilities, and of differing backgrounds

Managing social anxiety

If a young adult has trouble with new social experiences, or has anxiety, they may need to choose social activities carefully to build confidence and a history of success.

Find social situations that are not overwhelming. Depending on the young adult this can mean:

  • they already know someone

  • the place is familiar

  • they do not need to talk too much

  • they can do an activity they enjoy

  • it is not too loud or bright

Young adults may want to prepare for events to minimize anxiety. This can mean:

  • think of a few talking points

  • practice how they will enter and leave a conversation

  • practice asking questions that get other people talking

Finding Healthy Relationships

As young adults expand their social worlds and make new connections, they have an opportunity to determine what feels good in relationships, and what feels bad. They should notice how relationships feel, and invest in ones that make them feel safe, seen, and respected.

Being in a healthy relationship can mean:

  • Solving conflicts with kindness and respect

  • Showing affection regularly in a way that is wanted by both people

  • Making it clear that you appreciate people for who they are

  • Asking for consent before touching

  • Setting and respecting healthy boundaries

  • Making time for each other

  • Trying to be fair

  • Communicating openly, and listening well

As young adults get more adept at managing social relationships, they can also get better at finding and nurturing the relationships that foster contentment and wellbeing.

This content was reviewed by a psychologist at Boston Children's Hospital.

Developmental care is best when it is local. Families local to Boston can receive care from the Cardiac Neurodevelopmental Program (CNP) and/or the Boston Adult Congenital Heart (BACH) program. Families from other regions can use the link below to find their local care team.

Areias, M. E. G., Pinto, C. I., Vieira, P. F., Teixeira, F., Coelho, R., Freitas, I., ... & Areias, J. C. (2013). Long term psychosocial outcomes of congenital heart disease (CHD) in adolescents and young adults. Translational pediatrics, 2(3), 90.https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4728933/
Huisenga, D., La Bastide‐Van Gemert, S., Van Bergen, A., Sweeney, J., & Hadders‐Algra, M. (2021). Developmental outcomes after early surgery for complex congenital heart disease: A systematic review and meta‐analysis. Developmental Medicine & Child Neurology, 63(1), 29-46.https://onlinelibrary.wiley.com/doi/full/10.1111/dmcn.14512
Karsenty, C., Maury, P., Blot-Souletie, N., Ladouceur, M., Leobon, B., Senac, V., ... & Hascoet, S. (2015). The medical history of adults with complex congenital heart disease affects their social development and professional activity. Archives of cardiovascular diseases, 108(11), 589-597.https://www.sciencedirect.com/science/article/pii/S1875213615001291
Kovacs, A. H., Sears, S. F., & Saidi, A. S. (2005). Biopsychosocial experiences of adults with congenital heart disease: review of the literature. American heart journal, 150(2), 193-201.https://www.sciencedirect.com/science/article/pii/S000287030400537X?casa_token=DsRrpHxBtC4AAAAA:fx05sVii4yrbc8c4ew8SnDDx5IEH4YSeGKZdZHgHeXhVJb1VteMSniCsPec787WNYZctszOd
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4728933/https://www.sciencedirect.com/science/article/pii/S0167527308008401?casa_token=hHsfD8MEG5cAAAAA:dYjVMjVRrz2qjkuS44ZtJ9GkUcDlJlpPGuhSIA4tj13M3tJIc2n1mdHjx-WFNBdfDknVkWdU
Rometsch, S., Greutmann, M., Latal, B., Bernaschina, I., Knirsch, W., Schaefer, C., ... & Landolt, M. A. (2019). Predictors of quality of life in young adults with congenital heart disease. European Heart Journal-Quality of Care and Clinical Outcomes, 5(2), 161-168.https://academic.oup.com/ehjqcco/article/5/2/161/5102812
Teixeira, F. M., Coelho, R. M., Proença, C., Silva, A. M., Vieira, D., Vaz, C., ... & Areias, M. E. G. (2011). Quality of life experienced by adolescents and young adults with congenital heart disease. Pediatric cardiology, 32, 1132-1138.https://repositorio-aberto.up.pt/bitstream/10216/61852/2/46866.pdf
Van Rijen, E. H. M., Utens, E. M. W. J., Roos-Hesselink, J. W., Meijboom, F. J., Van Domburg, R. T., Roelandt, J. R. T. C., ... & Verhulst, F. C. (2003). Psychosocial functioning of the adult with congenital heart disease: a 20–33 years follow-up. European Heart Journal, 24(7), 673-683.https://watermark.silverchair.com/0.2007492.673.pdf?token=AQECAHi208BE49Ooan9kkhW_Ercy7Dm3ZL_9Cf3qfKAc485ysgAAA2QwggNgBgkqhkiG9w0BBwagggNRMIIDTQIBADCCA0YGCSqGSIb3DQEHATAeBglghkgBZQMEAS4wEQQMpSGpDoKSIMzh2SafAgEQgIIDF0QSZjNQocYsz0maPVp6pcboEQwNSFbymMUGY2lWH5qVcWNSJ7LmZqGOORmLaYUmOmmyRN5Wp6L5S4u5QuT9y0nLRTmJ9G2BhfsjoBO2Cebbgzlb1uvQuJ411xYUUvh1tPq8FCRp1DFW7KfSpFDOA3wXXMk6ry8QlJWTAxN2KTx_0zoCjXUq9cuU_MaUqCM2q3WG1cKV8mlJNtMDvGCyMUEsQHwr30AA5aG7bQBRHT3wfKwYdolPQc98cGqN3nJ9IbPGkvz1FARFeCdLRkM7rHdga8Za-uGZKpsRcLo5VR1kblWE86hlNDAv0IAhjCB0Hdb94ozhHf_9TrfnNBaq5BeDN-d0AYel0HOVdVy8JVwImGBbUXPmT4GyX7uP5h2BonHak7q5CCLVfjXPjSUdr1qvno5yc3LzSeNemokqXUGco-9R4_73nLOZatUEHpRc4FXAm9ThvmHV_61_gwQpRb9DYU0seK1PNrk2Tdf0dNYEGZq1prWMenD5LJ7yVoL2UyrXFRFh3DxBvs_ahzDEXusEJ366TAqr5sEFhYRIefgX9hSpjvf608_mDLakTYG10NHeM0dW9wmHcBff4kwC4FjX2sc-Bi-2g31N7FzOsVpIq0N3TJ5Z2D6o8WzaWPnegn1u8KzPCMr3DRedpehEXqbXWknUQ21eaSPko8bhflrQCx5Y97hs17rLsLTebHwmhA8qOODzqk9Vdy8TPzeQdMrTPv7n5nk86WqQV5N0xKGLr0uuG8vWaZMYhEYYVX6a5sMIreoxX9x7zWSMx-KDtno0VNnCrTkJ6dtjc3RkGnG8JFbjRNPEJ_3pVI34Hz76-xdGPAToRcJnU53DP9by-V2NLc5ZGMs02jg1SZYaw67uwO9TQFWK7b08-Cnt2UcYjY_dPCLEX-S1DvCs0IBV7nObzzOYV7sA6oSq48ovgtv-N8y0CuiSgvj292jYgKp9vCl1fMLTsRBQXRQ3qCEOTd1_1ZQ7IAbLbhov4CciWNMgBMi2hoHHVn37fM2qQb2oRB-ksCQRNAVx0L7j_bLpvlpoXyycrbEz
Zomer, A. C., Vaartjes, I., Uiterwaal, C. S., van der Velde, E. T., Sieswerda, G. J. T., Wajon, E. M., ... & Mulder, B. J. (2012). Social burden and lifestyle in adults with congenital heart disease. The American journal of cardiology, 109(11), 1657-1663.https://www.sciencedirect.com/science/article/pii/S0002914912006133?casa_token=n59dIdEhYUoAAAAA:nHeo1YPMbNqzto1GBcrtauhvdflINneAXsBNO_jnjVaeRODwZw-MuClEYENFqIWgP2hH2jch

You might also like:

Related Resources

Want to Learn More?

Look below for related resources, search resources by topic, or explore one of our custom guides.

Don't see what you're looking for? Let us know what you want to learn! We will try to add content to respond to your needs. Email CNPschedulingandquestions@childrens.harvard.edu

© 2026 All rights reserved