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Cognitive Development in Young Children with a CHD

Ages 1 - 4 Years

Young children are growing and changing rapidly, both in their bodies and in their brains. They tend to be curious, imaginative, and inquisitive, and eager to explore their world. Young children with heart defects are just as enthusiastic about learning as other children, but sometimes they face unique obstacles that can make learning hard. Intervention can help all children to make the best progress they can.

2 min readDec 31, 2023
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Cognitive development in early childhood

Cognition is how a child learns, thinks, solves problems, and understands. During early childhood, the brain grows quickly, and children discover new ways to make sense of what is around them. 

Toddlers and preschoolers generally learn an enormous amount about how the world works:  They recognize objects, places, people and animals. They learn routines, and discover how to solve simple problems. 

Toddlers’ and preschoolers’ thinking is usually no longer limited to the real world.  They generally have a good imagination, and can make up characters, objects, and storylines.  Sometimes, they are not sure what is real, and what is pretend, and they may invent magical explanations for events.  

A toddler with curly black hair and a congenital heart defect (CHD) plays with a large colorful wooden abacus.

Developmental milestones in context

Every child learns at their own pace, and there is a wide range of healthy development. Sometimes children make rapid progress in a particular skill, and at other times they seem to stall, or even lose skills. Delays are not always a sign of a bigger problem, and intervention can always help children to make progress.

Despite this natural unevenness and variability, most children reach certain cognitive milestones some time during early childhood.  Awareness of typical development can help caregivers to know when to seek help if it is needed.

A preschool girl with a congenital heart defect (CHD) wears an orange dress and smiles up through leaves.

Typical cognitive development, ages 1 - 2

Some time when they are 1 or 2, most toddlers learn to: 

  • Point to interesting things 

  • Look at something that someone else is pointing to

  • Use some words 

  • Use gestures like waving and nodding 

  • Understand many words and sentences 

  • Solve simple puzzles 

  • Match shapes 

  • Put objects inside a container 

  • Look for a hidden toy or person 

  • Sing familiar songs 

  • Play simple pretend games 

  • Play with a variety of toys, like cars, dolls, and blocks 

  • Scribble with crayons or markers 

  • Follow one-step directions 

  • Look at and name familiar things 

  • Look at and name pictures of familiar things 

A toddler boy with a congenital heart defect (CHD) sucks on a pacifier and lies on a wooden floor, playing with a truck.

Typical cognitive development, ages 3 - 4

Some time when they are 3 or 4, most children learn to:

  • Have back-and-forth conversations using full sentences 

  • Understand a picture book 

  • Pretend that an object is something else (example: a banana is a phone) 

  • Act out scenes and stories when they play 

  • Answer questions about things they did 

  • Describe a picture 

  • Say how they are feeling (example: thirsty, sleepy, mad) 

  • Follow directions with 2 or 3 parts 

  • Ask a lot of “why” questions 

  • Solve a simple jigsaw puzzle 

  • Fill and empty containers 

  • Look at small sets of objects, and know which are “more” or “less” 

  • Remember and recite a song or rhyme 

  • Make up a story 

A preschool boy with a congenital heart defect (CHD) wears a sunhat and builds a structure outside with sticks.

Challenges to typical cognitive development


Young children are naturally curious.

Young children are naturally curious.  They are eager to explore, and hungry to learn. 

However, sometimes children with congenital heart defects face obstacles to their learning. For example, children may have a harder time learning if they: 

  • often feel sick 

  • often feel very tired 

  • are often in the hospital 

  • cannot go to daycare or school 

  • cannot be around many people 

  • have a genetic syndrome that affects brain development 

  • have a brain injury 

A mom wearing a white coat squats on the sidewalk talking to her toddler son, who has a congenital heart defect (CHD).

Differences in cognitive development

Sometimes, young children with heart defects develop more slowly than other children.  With intervention, most children with heart defects can catch up with their peers.  Other children do not catch up, but intervention can help them to make the best possible progress.  When a young child has a cognitive delay, they might: 

  • show little interest in people or objects 

  • not speak, or speak very little 

  • not understand what people say 

  • not understand or use gestures 

  • not show people things 

  • not play pretend 

  • not pay attention to books or pictures 

  • play with the same toy the same way for longer than is typical 

  • not seem to understand the effect of common actions 

  • not know how to play with toys like dolls and cars 

  • behave in a way that is more typical of a baby

If you have any concerns about how your child is developing, tell your doctor. Your doctor can help to get your child an evaluation and appropriate services. Remember: every child can learn, and help is always available. 

A preschool girl with a congenital heart defect (CHD) stands on a sidewalk in a black sweater, hugging her stuffed toy.

Help for cognitive development

Each child follows their own path. Most children develop in an expected way, and some children develop in a more unusual way. All children can make progress with love, attention, and intervention, and all children can bring joy to those lucky enough to care for them.

If parents have questions or concerns about their child’s emotional development, help is always available. Families can seek help from their local doctor or cardiac neurodevelopmental program, and can get connected to services such as Early Intervention (EI), preschool Special Education, speech and language therapy, and occupational therapy (OT).

Developmental care is best when it is local. Families local to Boston can receive care from the Cardiac Neurodevelopmental Program (CNP). Families from other regions can use the link below to find their local care team.

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Calderon, J., Willaime, M., Lelong, N., Bonnet, D., Houyel, L., Ballon, M., ... & Khoshnood, B. (2018). Population-based study of cognitive outcomes in congenital heart defects. Archives of disease in childhood, 103(1), 49-56.https://adc.bmj.com/content/103/1/49.abstract
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Snookes, S. H., Gunn, J. K., Eldridge, B. J., Donath, S. M., Hunt, R. W., Galea, M. P., & Shekerdemian, L. (2010). A systematic review of motor and cognitive outcomes after early surgery for congenital heart disease. Pediatrics, 125(4), e818-e827.https://publications.aap.org/pediatrics/article-abstract/125/4/e818/73174/A-Systematic-Review-of-Motor-and-Cognitive
Wray, J. O. (2006). Intellectual development of infants, children and adolescents with congenital heart disease. Developmental science, 9(4), 368-378.https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1467-7687.2006.00502.x
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