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Cognitive Development in Babies with Heart Defects

Ages 0 - 12 Months

Cognition is how a baby learns, thinks, solves problems, and understands. During infancy, the brain grows quickly, and babies discover new ways to perceive and understand their world. Babies are born ready to learn.  They are keen observers, and they pay attention to the people and objects around them.  They notice patterns, and experiment through play and exploration. Some babies make slower progress, and each baby develops at their own pace.  Intervention can always help.

2 min readDec 31, 2023
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Typical infant cognitive development

During their first year, babies discover the basics of how their world works. During this year, most babies learn how to do things such as: 

  • Recognize familiar people, places, and things 

  • Remember and predict routines 

  • Examine objects with their hands and mouths 

  • Explore their space by moving and feeling 

  • Know how people and objects usually behave (example: if you drop an object, it falls) 

  • Bang things together to make sounds 

  • Understand that something still exists even if they cannot see it 

  • Use gestures, sounds, or words to get what they want 

  • Respond to simple gestures and words 

  • Tell the difference between living things and nonliving things

Parents lie on either side of their infant son, who has a congenital heart defect (CHD) and is drinking a bottle on a bed.

Challenges to typical cognitive development


Like all babies, babies with congenital heart defects are curious and eager to learn.

Like all babies, babies with congenital heart defects are curious and eager to learn.  However, sometimes that face challenges that can make learning hard, at least for a while.  

For example, babies may have a harder time learning if they: 

  • often feel sick 

  • often feel stressed 

  • sleep more than usual 

  • get tired easily 

  • spend a lot of time in the hospital 

  • are often recovering from illness or injury

  • cannot safely be touched or held 

  • cannot explore new spaces and objects 

  • have a genetic syndrome that affects brain development 

  • have a brain injury

A baby with a congenital heart defect (CHD) wears a white shirt and lies on her stomach, chewing on a toy,

Differences in a baby's cognitive development

Sometimes, babies with congenital heart defects (CHDs) develop differently from other babies.    With intervention, most babies with CHDs can catch up to their peers.  Other babies do not catch up, but intervention can help them to make great progress. 

When a baby has a cognitive delay,  they might: 

  • Not remember objects or people 

  • Not learn to expect things that happen every day 

  • Seem uninterested in toys 

  • Not respond to their name 

  • Not watch and follow objects with their eyes 

  • Not coo (make “ahh” noises) or babble (make “ba-ba-ba”-type noises) 

  • Not seem to remember things they have already learned 

  • Behave in a way that is more typical of a younger infant 

If you notice that your baby is struggling in any of these ways, tell your doctor. Remember: every baby can learn, and help is always available.  See below for information about intervention.

A father with a black shirt holds his infant son who has a congenital heart defect (CHD).

Your unique and wonderful baby

Each baby follows their own path. Most babies develop in an expected way, and some babies develop in a more unusual way. All babies can make progress with love, attention, and intervention, and all babies can bring joy to those lucky enough to care for them.

Developmental care is best when it is local. Families local to Boston can receive care from the Cardiac Neurodevelopmental Program (CNP). Families from other regions can use the link below to find their local care team.

Bonthrone, A. F., Dimitrova, R., Chew, A., Kelly, C. J., Cordero-Grande, L., Carney, O., ... & Counsell, S. J. (2021). Individualized brain development and cognitive outcome in infants with congenital heart disease. Brain communications, 3(2), fcab046.https://academic.oup.com/braincomms/article/3/2/fcab046/6184137
Grove, M. A., & Lancy, D. F. (2016). Cultural models of stages of child development. Childhood and adolescence: Cross-cultural perspectives and applications, 47-62.https://www.torrossa.com/en/resources/an/5527547#page=80
Hunnius, S. (2022). Early cognitive development: Five lessons from infant learning. In Oxford Research Encyclopedia of Psychology.https://oxfordre.com/psychology/display/10.1093/acrefore/9780190236557.001.0001/acrefore-9780190236557-e-821
Piaget, J. (1962). The stages of the intellectual development of the child. Bulletin of the Menninger clinic, 26(3), 120.https://www.proquest.com/openview/72b54b005a1882a4f2580d479be7b95f/1?pq-origsite=gscholar&cbl=1818298
Snookes, S. H., Gunn, J. K., Eldridge, B. J., Donath, S. M., Hunt, R. W., Galea, M. P., & Shekerdemian, L. (2010). A systematic review of motor and cognitive outcomes after early surgery for congenital heart disease. Pediatrics, 125(4), e818-e827.https://publications.aap.org/pediatrics/article-abstract/125/4/e818/73174/A-Systematic-Review-of-Motor-and-Cognitive
Wray, J. O. (2006). Intellectual development of infants, children and adolescents with congenital heart disease. Developmental science, 9(4), 368-378.https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1467-7687.2006.00502.x

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