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Mental Health and CHDs Targeted Toolkit

Ages Prenatal - 24+ Years

Chronic child illness is hard for everyone in the family. Kids with heart defects and their family members often face anxiety, depression, and/or post-traumatic stress. These resources can help families take charge of their mental health.

A girl with a congenital heart defect (CHD) and curly brown hair sits on the ground with her yellow lab dog.
Resources for kids

These books, websites, and videos can help children of all ages to better understand and manage differences in mental and behavioral health.

A mother whose child has a congenital heart defect (CHD) sits on her kitchen floor, meditating.
Parent mental health

Parents raising kids with congenital heart defects (CHDs) are exposed to unique sources of stress. By monitoring and treating their own mental health, they can be more present for their children.

A mother with black hair changes the diaper of her baby girl, who has a congenital heart defect (CHD).
Parents of infants

Parents of babies with heart defects often feel high levels of anxiety, and sometimes experience traumatic stress or depression. Managing parent mental health is an important part of taking care of the whole family.

A mom and her son with a congenital heart defect (CHD) walk on a beach, holding hands.
Resources for anxiety

Kids with congenital heart defects (CHDs) often feel high levels of stress and anxiety, which can interfere with their lives if it is not treated. These resources can help.

A little girl with a congenital heart defect (CHD) and black pigtails sits between her parents on the couch, listening to her dad's heart with a stethoscope.
Medical anxiety

Children with congenital heart defects (CHDs) frequently develop anxiety about medical care and physical health. Specialized treatment and interventions can help them.

A little boy with a congenital heart defect (CHD) wears a hooded blue jacket and crawls up a stairway at the beach.
Understanding anxiety

When adults better understand the nature of anxiety in children, they are better able to find appropriate treatments and coping strategies.

A pregnant mother with long black hair and a yellow dress puts her hand on her stomach, thinking about her baby with a congenital heart defect (CHD).
Pregnancy stress

Some stress is normal in pregnant parents, but too much stress can make it hard for parents to function. Learn how to manage pregnancy stress when a baby has a heart defect.

A man and his daughter who has a congenital heart defect (CHD) play with small blocks on a low table.
Psychotherapy for kids

Psychotherapy (or just "therapy") is a critical intervention for many kids with congenital heart defects (CHDs) and their family members. It can help them to manage their thoughts and feelings effectively, and to cope with life's challenges.

A mother in a red tank top hugs her daughter, who has a congenital heart defect (CHD) and anxiety.
Finding a therapist

These resources can help families with congenital heart defects (CHDs) to find an accessible and appropriate therapist to treat mental and behavioral health concerns.

A teen girl wearing a denim jacket with a congenital heart defect (CHD) clasps her hands while talking with a therapist.
Therapy for teens and adults

Teens and adults with congenital heart defects (CHDs) often benefit from psychotherapy to manage the big thoughts and emotions that can come with having a chronic illness.

A teen boy with a cognenital heart defect (CHD) sits up in bed, staring at the wall, managing his depression.
Depression

Sometimes, young people with heart defects experience a depressive disorder. Learn what depression can look like in kids, teens, and adults, and how to seek help.

A blond little girl wearing a swimsuit with a congenital heart defect (CHD) and ADHD grins up at the camera next to a swimming pool.
ADHD

Kids with congenital heart defects (CHDs) often have attention-deficit hyperactivity disorder (ADHD). Learn more about this common condition, and how to help kids thrive.

A mother sits on a bridge with her arm around her young son, who has a congenital heart defect (CHD) and autism spectrum disorder.
Autism Spectrum Disorder (ASD)

Autism spectrum disorder may be more common in kids with congenital heart defects (CHDs) than in other kids. Learn more about autism, and strategies to support children's development.

A mother stands in a doorway cuddling her baby, who has a congenital heart defect (CHD).
Supporting babies

This article parents strategies for promoting the development of emotional skills in their babies with congenital heart defects.

A baby girl with a congenital heart defect (CHD) has a brown pigtail and is sucking on a pacifier.
Interventions for babies

Professionals can help babies with congenital heart defects (CHDs) to learn early emotional skills. This article describes the services available and how to find them.

A mom squats on the sidewalk and gives her preschool age son who has a congenital heart defect (CHD) a kiss while her older daughter looks at the camera.
Supporting young children

This article helps caregivers know how to guide their young child's emotional learning, and how to support the development of self-regulation.

A mother with short blond hair hugs her young son, who has a congenital heart defect (CHD) and is crying.
Interventions for young children

The services described in this article can help young children with congenital heart defects (CHDs) to better understand, manage, and respond to emotions.

A mother sits at a low table on the ground, playing a game with two kids with congenital heart defects (CHDs).
Interventions for kids

This article directs families to the range of services that can help kids with heart defects to learn to understand and manage their emotions.

A father wearing a red robe hugs his school-age daughter, who has a congenital heart defect (CHD).
Supporting kids

This article describes strategies that families and educators can use to help children with heart defects to better understand and manage strong emotions.

A white-haired grandmother kisses the head of her teenage granddaughter, who is wearing a black tanktop, laughing, and has a congenital heart defect (CHD).
Interventions for teens

Families have many options when seeking support for their teens' emotional development. This article directs families to some of the available services and resources.

A dad and his teen daughter who has a congenital heart defect (CHD) sit side-by-side on the floor, both playing guitar.
Supporting teens

Parents and teachers can use these strategies to help their teens to understand and manage emotions, and to develop better self-regulation.

A young woman with a congenital heart defect (CHD) wears an orange dress and dances outside.
Interventions for adults

Young adults with heart defects often seek help for managing and understanding big emotions. These resources can help them.

A title slide from the congenital heart academy about psychosocial outcomes of congenital heart defects (CHDs).
Psychosocial outcomes of CHDs

This professional presentation provides an overview of the psychosocial outcomes associated with having a complex congenital heart defect (CHD).

A slide from an american academy of pediatrics (AAP) presentation on promoting mental health in the cardiac intensive care unit (CICU) among newborns with congenital heart defects (CHDs) and their families.
Mental health in the CICU

This presentation teaches clinicians how to promote mental health among newborns and their families in the CICU.

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