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Mental Health and CHDs Content Collection

Ages Prenatal - 24+ Years

When a child in the family has a congenital heart defect (CHD), everyone in the family is exposed to stress, and may be exposed to frightening experiences. Kids with heart defects and their family members often face anxiety, depression, and/or post-traumatic stress. By focusing on mental health, caregivers can improve the quality of life of everyone living with a CHD.

Presentation on mental health and congenital heart defects by Erica Sood and Catherine Ullman Shade.
Mental Health and CHDs video

In this video, experts on cardiac neurodevelopment describe the link between heart defects and mental health, and discuss strategies to support children at home and at school.

A girl with a congenital heart defect (CHD) and curly brown hair sits on the ground with her yellow lab dog.
Resources for kids

These books, websites, and videos can help children of all ages to better understand and manage differences in mental and behavioral health.

A little boy with a congenital heart defect (CHD) wearing an orange and black hoodie looks back over his shoulder.
Early behavioral health disorders

This article provides an overview of the mental and behavioral health disorders that can be diagnosed in early childhood, and guides caregivers to interventions that can help.

A mother whose child has a congenital heart defect (CHD) sits on her kitchen floor, meditating.
Parent mental health

Parents raising kids with congenital heart defects (CHDs) are exposed to unique sources of stress. By monitoring and treating their own mental health, they can be more present for their children.

A mother with black hair changes the diaper of her baby girl, who has a congenital heart defect (CHD).
Parents of infants

Parents of babies with heart defects often feel high levels of anxiety, and sometimes experience traumatic stress or depression. Managing parent mental health is an important part of taking care of the whole family.

A mom and her son with a congenital heart defect (CHD) walk on a beach, holding hands.
Child anxiety

Kids with congenital heart defects (CHDs) often feel high levels of stress and anxiety, which can interfere with their lives if it is not treated. Therapy and other treatments can help anxious kids to feel better.

A little girl with a congenital heart defect (CHD) and black pigtails sits between her parents on the couch, listening to her dad's heart with a stethoscope.
Medical anxiety

Children with congenital heart defects (CHDs) frequently develop anxiety about medical care and physical health. Specialized treatment and interventions can help them.

A little boy with a congenital heart defect (CHD) wears a hooded blue jacket and crawls up a stairway at the beach.
Resources for child anxiety

Parents and professionals can use these resources to support children with congenital heart defects (CHDs) who are experiencing anxiety.

A man and woman put their hands on the woman's pregnant belly, connecting with their unborn baby with a congenital heart defect (CHD).
Stress in pregnancy

Stress is common in any pregnant person, and can be especially prevalent in parents expecting a child with a congenital heart defect. Parents can take charge of their stress by better understanding it, and seeking interventions to help.

A pregnant mother with long black hair and a yellow dress puts her hand on her stomach, thinking about her baby with a congenital heart defect (CHD).
Managing pregnancy stress

Some stress is normal in pregnant parents, but too much stress can make it hard for parents to function. Learn how to manage pregnancy stress when a baby has a heart defect.

A man and his daughter who has a congenital heart defect (CHD) play with small blocks on a low table.
Psychotherapy for kids

Psychotherapy (or just "therapy") is a critical intervention for many kids with congenital heart defects (CHDs) and their family members. It can help them to manage their thoughts and feelings effectively, and to cope with life's challenges.

A mother in a red tank top hugs her daughter, who has a congenital heart defect (CHD) and anxiety.
Finding a therapist

These resources can help families with congenital heart defects (CHDs) to find an accessible and appropriate therapist to treat mental and behavioral health concerns.

A teen girl wearing a denim jacket with a congenital heart defect (CHD) clasps her hands while talking with a therapist.
Therapy for teens and adults

Teens and adults with congenital heart defects (CHDs) often benefit from psychotherapy to manage the big thoughts and emotions that can come with having a chronic illness.

A teen boy with a cognenital heart defect (CHD) sits up in bed, staring at the wall, managing his depression.
Depression

Sometimes, young people with heart defects experience a depressive disorder. Learn what depression can look like in kids, teens, and adults, and how to seek help.

A headshot of child psychologist Dr. Elisa Bronfman of Boston Children's Hospital, who specializes in treating teens and parents with congenital heart defects (CHDs).
Group therapy for teens and young adults

In this article, child psychologist Dr. Elisa Bronfman explains what she has learned about providing therapy in a group setting to teens and young adults with congenital heart defects (CHDs).

The front door of an emergency room.
Mental health emergencies

This video explains what counts as a mental health emergency, and how families should respond if a child is having an emergency.

A boy with a congenital heart defect (CHD) sits on the couch and hugs his white dog to manage his anxiety.
Children's mental health

This resource describes how caregivers can monitor and support the mental health of kids with congenital heart defects (CHDs).

A blond little girl wearing a swimsuit with a congenital heart defect (CHD) and ADHD grins up at the camera next to a swimming pool.
ADHD

Kids with congenital heart defects (CHDs) often have attention-deficit hyperactivity disorder (ADHD). Learn more about this common condition, and how to help kids thrive.

Doctors from Boston Children's Hospital sit at a table discussing helping children who feel stress about school.
School stress

Anxiety about school is a common problem in kids with congenital heart defects (CHDs), and it can lead to school refusal if it is not treated. Learn more about how to help through this video.

A mother sits on a bridge with her arm around her young son, who has a congenital heart defect (CHD) and autism spectrum disorder.
Autism Spectrum Disorder (ASD)

Autism spectrum disorder may be more common in kids with congenital heart defects (CHDs) than in other kids. Learn more about autism, and strategies to support children's development.

A little boy with a congenital heart defect (CHD) jumps on a small trampoline next to his older sister, who is wearing a pink tutu.
Siblings

Siblings of kids with congenital heart defects (CHDs) often struggle with overwhelming thoughts and feelings. These resources can help caregivers to support healthy siblings and the whole family.

A circle of teens and parents with congenital heart defects (CHDs) stand in a circle, putting their hands on each other in the center.
Finding community

Finding a community is a critical component of mental health for most people with congenital heart defects (CHDs) and their families.

Hands spell out the word "love" in front of an ocean.
Support networks

This article describes how families can intentionally build a support network after receiving a diagnosis of a congenital heart defect (CHD), and includes links to many resources to help.

A little girl with black hair and a congenital heart defect (CHD) cuddles with her mother in bed.
Secure attachment

A secure parent-child attachment sets the foundation for good mental health in children. At any age, parents can intentionally work on strengthening their attachment with their child using these strategies.

A little girl with a congenital heart defect (CHD) and her mom sit in a doctor's office holding heart balloons.
Coping with pain

When young people experience chronic pain, both their physical and mental health can suffer. These videos give strategies for effective management of pain.

A little girl with brown curls, a white shirt, and a congenital heart defect (CHD) hugs her mom from behind.
Preparing for procedures

Medical anxiety is very common among kids with congenital heart defects (CHDs) and their families. The strategies in this video can help families prepare their children for procedures, so that everyone feels calmer and more in control.

A teen boy with a congenital heart defect (CHD) who has been the victim of bullying wears a gray hoodie and looks at the camera.
Bullying

Bullying can dramatically harm a child's mental health. These resources explain how to monitor for bullying, and what to do if a child experiences it.

A boy with a congenital heart defect (CHD) wears a red shirt and stands alone after being the victim of bullying.
Medical bullying

When a child has a visible disability or illness, sometimes they are subjected to teasing, staring, unwanted questions, or even bullying. This video explains what to do to help.

A mother holds her baby with a congenital heart defect (CHD) in front of her on a table, and smiles into her face.
Baby emotional development

This article describes the process of emotional development in babies, and how the process may be disrupted in babies with congenital heart defects (CHDs).

A mother stands in a doorway cuddling her baby, who has a congenital heart defect (CHD).
Supporting babies

This article parents strategies for promoting the development of emotional skills in their babies with congenital heart defects.

A baby girl with a congenital heart defect (CHD) has a brown pigtail and is sucking on a pacifier.
Interventions for babies

Professionals can help babies with congenital heart defects (CHDs) to learn early emotional skills. This article describes the services available and how to find them.

A mother with short curly hair talks with her toddler son, who has a congenital heart defect (CHD) and is wearing a leather jacket.
Early emotional development

This article describes how young children usually develop emotional skills, and how having a congenital heart defect (CHD) can make the learning process look different.

A mom squats on the sidewalk and gives her preschool age son who has a congenital heart defect (CHD) a kiss while her older daughter looks at the camera.
Supporting young children

This article helps caregivers know how to guide their young child's emotional learning, and how to support the development of self-regulation.

A mother with short blond hair hugs her young son, who has a congenital heart defect (CHD) and is crying.
Interventions for young children

The services described in this article can help young children with congenital heart defects (CHDs) to better understand, manage, and respond to emotions.

A mother sits on the porch with her son, who has a congenital heart defect (CHD), as they build with blocks.
Behavioral support

Parents of kids with heart defects sometimes need support to manage their children's challenging behaviors. These resources can help.

A mom and dad sit on the beach, smiling at their young son, who is wrapped in a towel and has a congenital heart defect (CHD).
Managing challenging behavior

These strategies can help caregivers feel more confident in managing challenging behaviors in children with congenital heart defects (CHDs), while maintaining a secure attachment, and validating the children's thoughts and feelings.

A mother sits at a low table on the ground, playing a game with two kids with congenital heart defects (CHDs).
Interventions for kids

This article directs families to the range of services that can help kids with heart defects to learn to understand and manage their emotions.

A father wearing a red robe hugs his school-age daughter, who has a congenital heart defect (CHD).
Supporting kids

This article describes strategies that families and educators can use to help children with heart defects to better understand and manage strong emotions.

A white-haired grandmother kisses the head of her teenage granddaughter, who is wearing a black tanktop, laughing, and has a congenital heart defect (CHD).
Interventions for teens

Families have many options when seeking support for their teens' emotional development. This article directs families to some of the available services and resources.

A dad and his teen daughter who has a congenital heart defect (CHD) sit side-by-side on the floor, both playing guitar.
Supporting teens

Parents and teachers can use these strategies to help their teens to understand and manage emotions, and to develop better self-regulation.

A young woman with a congenital heart defect (CHD) wears an orange dress and dances outside.
Interventions for adults

Young adults with heart defects often seek help for managing and understanding big emotions. These resources can help them.

Three young men with congenital heart defects (CHDs) stand on a dock next to a lake.
Supporting adults

Young adults and their family members can use these strategies to build and maintain good emotional health.

A boy with a congenital heart defect (CHD) sits on the grass, giving a kiss to his big yellow anxiety service dog.
Service dogs

Sometimes, kids with mental health disorders can find relief through a specially-trained service dog. Click to learn more.

A teen girl with a congenital heart defect (CHD) rides a brown horse through therapeutic riding.
Horse-assisted therapies

Therapeutic riding can be a helpful intervention for some kids with mental health concerns. This article explains more.

Cillian's father holds Cillian on his lap, reading him a book, while Cillian recovers from open heart surgery for his congenital heart defect (CHD).
Cillian's story

Cillian was born with a complex congenital heart defect (CHD). Throughout his tumultuous first year, his parents sought help to preserve their own mental health while also taking care of Cillian.

Addie, who has a congenital heart defect (CHD), holds Sam on her back.
Sam and Addie

When Addie's family learned she would require open-heart surgery, they were frightened. Meeting Sam's family made them all feel so much better. Addie's and Sam's story highlights the healing power of community.

A mom and dad hold their dog and daughter on their laps on the beach as their daughter recovers from open-heart surgery for a congenital heart defect.
Avery's story

Avery was a toddler when her parents learned she would require open-heart surgery. They worked with a psychologist to prepare Avery and themselves.

Baby Quinn is swaddled in a green blanket before his open-heart surgery at Boston Children's Hospital for a congenital heart defect (CHD).
Jenna and Quinn

Jenna was pregnant with Quinn, she learned that Quinn would have a congenital heart defect (CHD). A prenatal stress reduction program helped Jenna feel calmer and more controlled by the time Quinn was born.

Slide from the american academy of pediatrics (AAP) about trauma informed care for newborns in the cardiac intensive care unit (CICU).
Mental health in the CICU

This presentation from the American Academy of Pediatrics (AAP) teaches clinicians to use trauma-informed care to support mental health in their newborn patients in the cardiac intensive care unit (CICU).

A slide from a webinar series for clinicians to promote resilience among families with chronic pediatric illness such as a congenital heart defect (CHD).
Family resilience

This video series teaches clinicians strategies for supporting the mental health and resilience of families managing chronic child illness.

A title slide from the congenital heart academy about psychosocial outcomes of congenital heart defects (CHDs).
Psychosocial outcomes of CHDs

This professional presentation provides an overview of the psychosocial outcomes associated with having a complex congenital heart defect (CHD).

Dr. David DeMaso of Boston Children's Hospital stands at a podium discussing family systems in congenital heart defects (CHDs).
Family systems and CHDs

A presentation by Dr. David DeMaso about the effect of congenital heart defects on the functioning of the family system.

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