Mental Health and CHDs Content Collection
Ages Prenatal - 24+ Years
When a child in the family has a congenital heart defect (CHD), everyone in the family is exposed to stress, and may be exposed to frightening experiences. Kids with heart defects and their family members often face anxiety, depression, and/or post-traumatic stress. By focusing on mental health, caregivers can improve the quality of life of everyone living with a CHD.
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Mental Health and CHDs video
In this video, experts on cardiac neurodevelopment describe the link between heart defects and mental health, and discuss strategies to support children at home and at school.
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Resources for kids
These books, websites, and videos can help children of all ages to better understand and manage differences in mental and behavioral health.
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Early behavioral health disorders
This article provides an overview of the mental and behavioral health disorders that can be diagnosed in early childhood, and guides caregivers to interventions that can help.
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Parent mental health
Parents raising kids with congenital heart defects (CHDs) are exposed to unique sources of stress. By monitoring and treating their own mental health, they can be more present for their children.
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Parents of infants
Parents of babies with heart defects often feel high levels of anxiety, and sometimes experience traumatic stress or depression. Managing parent mental health is an important part of taking care of the whole family.
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Child anxiety
Kids with congenital heart defects (CHDs) often feel high levels of stress and anxiety, which can interfere with their lives if it is not treated. Therapy and other treatments can help anxious kids to feel better.
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Medical anxiety
Children with congenital heart defects (CHDs) frequently develop anxiety about medical care and physical health. Specialized treatment and interventions can help them.
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Resources for child anxiety
Parents and professionals can use these resources to support children with congenital heart defects (CHDs) who are experiencing anxiety.
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Stress in pregnancy
Stress is common in any pregnant person, and can be especially prevalent in parents expecting a child with a congenital heart defect. Parents can take charge of their stress by better understanding it, and seeking interventions to help.
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Managing pregnancy stress
Some stress is normal in pregnant parents, but too much stress can make it hard for parents to function. Learn how to manage pregnancy stress when a baby has a heart defect.
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Psychotherapy for kids
Psychotherapy (or just "therapy") is a critical intervention for many kids with congenital heart defects (CHDs) and their family members. It can help them to manage their thoughts and feelings effectively, and to cope with life's challenges.
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Finding a therapist
These resources can help families with congenital heart defects (CHDs) to find an accessible and appropriate therapist to treat mental and behavioral health concerns.
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Therapy for teens and adults
Teens and adults with congenital heart defects (CHDs) often benefit from psychotherapy to manage the big thoughts and emotions that can come with having a chronic illness.
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Depression
Sometimes, young people with heart defects experience a depressive disorder. Learn what depression can look like in kids, teens, and adults, and how to seek help.
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Group therapy for teens and young adults
In this article, child psychologist Dr. Elisa Bronfman explains what she has learned about providing therapy in a group setting to teens and young adults with congenital heart defects (CHDs).
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Mental health emergencies
This video explains what counts as a mental health emergency, and how families should respond if a child is having an emergency.
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Children's mental health
This resource describes how caregivers can monitor and support the mental health of kids with congenital heart defects (CHDs).
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ADHD
Kids with congenital heart defects (CHDs) often have attention-deficit hyperactivity disorder (ADHD). Learn more about this common condition, and how to help kids thrive.
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School stress
Anxiety about school is a common problem in kids with congenital heart defects (CHDs), and it can lead to school refusal if it is not treated. Learn more about how to help through this video.
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Autism Spectrum Disorder (ASD)
Autism spectrum disorder may be more common in kids with congenital heart defects (CHDs) than in other kids. Learn more about autism, and strategies to support children's development.
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Siblings
Siblings of kids with congenital heart defects (CHDs) often struggle with overwhelming thoughts and feelings. These resources can help caregivers to support healthy siblings and the whole family.
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Finding community
Finding a community is a critical component of mental health for most people with congenital heart defects (CHDs) and their families.
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Support networks
This article describes how families can intentionally build a support network after receiving a diagnosis of a congenital heart defect (CHD), and includes links to many resources to help.
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Secure attachment
A secure parent-child attachment sets the foundation for good mental health in children. At any age, parents can intentionally work on strengthening their attachment with their child using these strategies.
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Coping with pain
When young people experience chronic pain, both their physical and mental health can suffer. These videos give strategies for effective management of pain.
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Preparing for procedures
Medical anxiety is very common among kids with congenital heart defects (CHDs) and their families. The strategies in this video can help families prepare their children for procedures, so that everyone feels calmer and more in control.
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Bullying
Bullying can dramatically harm a child's mental health. These resources explain how to monitor for bullying, and what to do if a child experiences it.
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Medical bullying
When a child has a visible disability or illness, sometimes they are subjected to teasing, staring, unwanted questions, or even bullying. This video explains what to do to help.
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Baby emotional development
This article describes the process of emotional development in babies, and how the process may be disrupted in babies with congenital heart defects (CHDs).
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Supporting babies
This article parents strategies for promoting the development of emotional skills in their babies with congenital heart defects.
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Interventions for babies
Professionals can help babies with congenital heart defects (CHDs) to learn early emotional skills. This article describes the services available and how to find them.
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Early emotional development
This article describes how young children usually develop emotional skills, and how having a congenital heart defect (CHD) can make the learning process look different.
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Supporting young children
This article helps caregivers know how to guide their young child's emotional learning, and how to support the development of self-regulation.
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Interventions for young children
The services described in this article can help young children with congenital heart defects (CHDs) to better understand, manage, and respond to emotions.
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Behavioral support
Parents of kids with heart defects sometimes need support to manage their children's challenging behaviors. These resources can help.
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Managing challenging behavior
These strategies can help caregivers feel more confident in managing challenging behaviors in children with congenital heart defects (CHDs), while maintaining a secure attachment, and validating the children's thoughts and feelings.
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Interventions for kids
This article directs families to the range of services that can help kids with heart defects to learn to understand and manage their emotions.
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Supporting kids
This article describes strategies that families and educators can use to help children with heart defects to better understand and manage strong emotions.
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Interventions for teens
Families have many options when seeking support for their teens' emotional development. This article directs families to some of the available services and resources.
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Supporting teens
Parents and teachers can use these strategies to help their teens to understand and manage emotions, and to develop better self-regulation.
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Interventions for adults
Young adults with heart defects often seek help for managing and understanding big emotions. These resources can help them.
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Supporting adults
Young adults and their family members can use these strategies to build and maintain good emotional health.
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Service dogs
Sometimes, kids with mental health disorders can find relief through a specially-trained service dog. Click to learn more.
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Horse-assisted therapies
Therapeutic riding can be a helpful intervention for some kids with mental health concerns. This article explains more.
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Cillian's story
Cillian was born with a complex congenital heart defect (CHD). Throughout his tumultuous first year, his parents sought help to preserve their own mental health while also taking care of Cillian.
Sam and Addie
When Addie's family learned she would require open-heart surgery, they were frightened. Meeting Sam's family made them all feel so much better. Addie's and Sam's story highlights the healing power of community.
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Avery's story
Avery was a toddler when her parents learned she would require open-heart surgery. They worked with a psychologist to prepare Avery and themselves.
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Jenna and Quinn
Jenna was pregnant with Quinn, she learned that Quinn would have a congenital heart defect (CHD). A prenatal stress reduction program helped Jenna feel calmer and more controlled by the time Quinn was born.
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Mental health in the CICU
This presentation from the American Academy of Pediatrics (AAP) teaches clinicians to use trauma-informed care to support mental health in their newborn patients in the cardiac intensive care unit (CICU).
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Family resilience
This video series teaches clinicians strategies for supporting the mental health and resilience of families managing chronic child illness.
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Psychosocial outcomes of CHDs
This professional presentation provides an overview of the psychosocial outcomes associated with having a complex congenital heart defect (CHD).
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Family systems and CHDs
A presentation by Dr. David DeMaso about the effect of congenital heart defects on the functioning of the family system.