Assessment and Evaluation Collection
Young people with congenital heart defects (CHDs) are at a higher than usual risk of developmental delays and disabilities. Regular monitoring can help detect any emerging problems and guide intervention. These resources provide insight into how evaluations and assessments can help young people with heart defects. We hope you find them useful!
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Evaluation schedule for high-risk heart defects
Experts recommend that most young people with high-risk congenital heart defects (CHDs) should be evaluated at key ages. This article provides an overview of the evaluation schedule.
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Newborn developmental consultation
Before they are discharged from the hospital, most babies born with congenital heart defects should have a developmental consultation to measure their progress so far, and to make a plan for the coming months.
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Infant Neurodevelopmental Assessment
When they are approximately 6 months old, most babies with high-risk congenital heart defects should have a visit with a medical professional to assess their development and neurological function.
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Toddler evaluation
When they are about 18 months old, toddlers with high-risk congenital heart defects should usually have an evaluation to measure their progress, and determine what resources they need.
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Preschool entry evaluation
Many children with high-risk congenital heart defects (CHDs) should be evaluated when they are about 3 years old, which is often when they are graduating from Early Intervention (EI) and preparing for preschool. This evaluation can help determine if they should qualify for Special Education in preschool.
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Kindergarten entry evaluation
Before transitioning to formal schooling at about age 5, many kids with high-risk heart defects should have an evaluation to better understand their needs, and to set up appropriate supports in school.
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3rd-4th grade transition evaluation
Midway through elementary school, students often face new demands and expectations. An evaluation at this time can help to guide kids with high-risk congenital heart defects (CHDs).
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Entry to middle school evaluation
Transitioning to middle school can pose new challenges and opportunities to students. Kids with high-risk congenital heart defects (CHDs) should often be evaluated at about age 11 in order to make this transition with confidence and any needed support.
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Entry to high school evaluation
At about age 14, many kids are preparing to enter high school, and to take on increased responsibilities and expectations. At the same time, transition planning starts for students on IEPs. An evaluation at this age can provide clarity and direction.
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Transition to adulthood evaluation
At age 18, young people with congenital heart defects (CHDs) are often faced with major life transitions, and often an increase in independence. An evaluation can help to clarify their needs, goals, and next steps.
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Aidan's story
Aidan and his family struggled to understand his behavior through his early childhood. When he was preparing to enter middle school, an evaluation helped them to comprehend his profile, and to meet his needs.
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Using evaluations to plan education
When a child with a congenital heart defect (CHD) has a neuropsychological evaluation, parents and teachers can use that evaluation to update a child's education plan. Learn how here.
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Cardiac fitness assessment strategies
In this presentation, experts in cardiac fitness discuss strategies for assessing the fitness of kids with congenital heart defects (CHDs).
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Developmental Care
Developmental Care is a set of practices that can improve the functioning and outcomes of babies in the hospital. One piece of Developmental Care is assessing the development of infants.
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Developmental screening tools
Doctors and nurses can use screening tools to keep track of a child's development during routine visits. Such routine screening is a critical component of neurodevelopmental care of young people with congenital heart defects (CHDs). This resource lists appropriate developmental screening tools for each age.
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Questions for caregivers to monitor development
During routine appointments, doctors and other professionals can help to monitor a child's development by asking these questions. Developmental surveillance can help to identify emerging challenges and to target intervention.
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Surveillance, screening, evaluation
The American Heart Association (AHA) recommends that children with congenital heart defects (CHDs) have developmental surveillance, screening, and evaluation through childhood, according to their risk factors.
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Transition assessments and plans
By the time they are 16 (or 14 in some states including Massachusetts), students with IEPs are required to have a transition assessment at school, which the team will use to write a transition plan.
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What to know about education evaluations for kids with a CHD
Kids with congenital heart defects (CHDs) often require educational evaluations, either in school or in a clinic. This article explains what evaluators ( and parents) should know about kids with heart defects in planning and interpreting these evaluations.
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Early Intervention guide
Most young children (0, 1, 2 years old) with congenital heart defects (CHDs) qualify for Early Intervention services. EI includes regular evaluation of a child's skills and progress.
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Special Education and 504 Plans
Many kids with congenital heart defects (CHDs) qualify for help in school through either Special Education or a 504 Plan. Either service starts with an evaluation to identify their strengths and needs.
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Preschool Special Education
When they turn three, children with disabilities in the United States are often eligible for Special Education preschool. The process starts with an evaluation through the school district.
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Wesley's story
Throughout his life, Wesley has had multiple neurodevelopmental and educational evaluations, which have helped his family to give him the care and services he has needed.
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Ethan's story
Jessica tells the story of her late son Ethan, and how a neurodevelopmental evaluation gave her clarity and guidance when she needed it most.